Today was the beginning of our Scottish Rite journey and we think it went really well. We started off in the orthopedic department since that is where the issue initially presented itself. One Dr. came in and did an initial evaluation talking to us and looking him over. His initial eval said about what we thought; his bones all seem fine, it looks like the muscles are just weak.
So then the Orthopedic Surgeon came in and we talked with him. He wanted to do x-rays just to be sure but was pretty confident everything would be normal. We told him about our other concerns, his eye, the throwing up, the muscle weakness overall, and he agreed that neurology might be able to give us some answers. (last night as I was looking around on the website I found out they had a neurology division, didn't know that!) He kept saying there might be a reason for his overall "loosey goosiness" (his words) But he said he wanted to go ahead and fit him for some orthotics to give him some support. A therapist came in next to evaluate him. She agreed about the orthotics and also wanted to get him going with some physical therapy through ECI. (Early Childhood Intervention) She said she thinks if we focus on his core muscles the other stuff might get stronger in the process. (exactly what our Chiropractor said) They come to the house to work with him, how much is determined by the initial evaluation.
Then we headed off to x-ray. That went pretty well, although I wasn't allowed in the room since I'm pregnant. (the guy was funny, there is a sign on the door that says if you are pregnant to tell the tech. I said, "You can tell I'm pregnant right?" He laughed and said yes but it's always kinda weird getting that out of the way with an obviously pregnant women. funny.) Anyway, after that we headed over to Family Services (like Social Services) to drop off the paperwork to get started with the physical therapy.
Our last stop was back down to Orthotics to get him fitted. They made little casts of his feet and then cut them off. He did really well during that but watched everything. We picked out camo to go on his orthotic, although most of it will be inside a shoe but it's more fun than white. That Dr. said he won't need "special" shoes, but they might need to be wider than what you normally find. He said they have shoes if the ones we have don't work. It will take a few weeks for them to make the braces, so we go back in about 3 weeks to get those.
They passed all our info on to Neurology and they are supposed to call us within a couple of weeks to set up that appointment. Hopefully that will go quick since Squirt is due to join us in about 6 1/2 weeks.
Caleb has an appointment with a pediatric gastroenterologist on Thursday to see if we can find a reason for his continual vomiting. We will see what happens with all that.
Overall we are happy with today's outcome, they addressed all our concerns, agreed with what we felt and what we have been told by other Dr.'s. I told Jason that sometimes I think it would be easier if they did find something "wrong," but of course that is scary too. So for now we keep on taking steps and the Dr. today said too that there might not be "a reason" for all of his symptoms, but I am hoping that IF there is the next few visits (the GI, the therapist, the Neurologist) will find it.
Thank you for all your prayers!!
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