Surgery!!

(I wrote part of this late last night but got too tired to finish)
Today was the day! We got ready at Scottish Rite and headed over to Medical City. It was only about a 10 minute drive and we made it just fine. We got checked in and they told us to wait about an hour. So we played in the play room. When we checked back an hour later they said everything was running a bit behind. Like 2 hours behind! So Jason and I took turns eating in the cafeteria ( we didn't want to eat in front of Caleb since he wasn't allowed to eat) and Caleb took a nap during part of the wait. It was finally time to go get started! They gave him some "goofy juice" which always works so well. I even took a video of Him after it had kicked in! So funny!

In the play room waiting.  The Lion says, "RWAR!!!"

His last picture with just 1 button on his tummy

We signed some papers and they took him away.  It was a pretty quick procedure, took a little less than an hour.  The surgeon came out and said he did great and everything went according to plan.  They were able to use the mic-key button as hoped.  (sometimes things don't go how they want and they have to start with a little different tube and then change it out in a few months) He did say that Caleb was having a bit of a hard time waking up but that when he woke up some they would come and get us.

Sleeping during our 2 hour wait

It was about another 30 minutes before they came to take us back.  Apparently he is REALLY sensitive to narcotics (morphine) and they had to give him something to reverse it's effects.  The anesthesiologist said that was very rare but fine none the less.  He was pretty cranky when we got back there.  I held him some and that seemed to help. He was the most mad about his IV.  He hated all the tape! (I think the IV was the worst  because they gave him local anesthetic at the site of the button so he didn't know that hurt yet)  He was still pretty out of it and kept going in and out of sleep.  We were in the recovery room for about 2 hours and then they finally wheeled us up to our room.

About an hour after surgery in the recovery room

Alyssa and her mom came and brought us food (thank you!) and got to watch Caleb sleep. :) Overall the night went pretty well.  They started feeding him Pedialyte through his button at midnight and by the morning had worked him over to formula.  He did great, no gagging or trouble.  He kept wanting to be help on our shoulder but after trying once or twice he realized that didn't work very well.  Poor guy.  He did wake up saying, "Ow ow ow" one time but they got him some Tylenol with codeine and that took care of it.  He woke up a few times during the night but went back to sleep pretty quick.  Jason and I took turns sleeping with him and that was nice.  At Scottish Rite they only let 1 parent stay over night which is really hard.  It's nice for the one that gets to go home and sleep uninterrupted, but the driving back and forth is a pain.  (especially the traffic in the mornings) And the one that is left at the hospital has a rough time being alone with no support.  So it was a nice change for us both to be there.
The morning was spent watching some Barney and Curious George and then he fell back asleep around noon. (he was only up for about 3 hours.  But long enough to know his tummy hurt!) The surgeon came in a little after 10 and said he was going to get us out of there to come back to Scottish Rite.  3 hours later the paperwork was done :-/ We got loaded up and headed back to our "home base." We have been here for a few hours and Caleb has been sleeping the whole time.
Our dietitian came in and got him started on feeds again,she said no solid foods for 48 more hours.  Hopefully Caleb will be ok with that.  She is a big fan of feeding blenderized food through the tube so in a few weeks she will start to write us plans for that.  He will still be getting Pediasure through the button, but I am thrilled about getting him some good fruits and veggies since he won't eat many by mouth. Our wonderful organic garden will benefit him too!! YEA!! She also gave us a box full of misc supplies.  Enough hopefully to keep us until we can get the new insurance for Caleb, or get him on Social Security. (if we qualify)
We should get out on Sunday or Monday morning at the very latest.  We are very ready to be home, although a little intimidated about finding our new normal.
Thank you for all the love and support you all have shown.  The prayers, facebook comments, meals, texts, we appreciate it all.  We are so blessed to have such wonderful support.

Love,
 Jessica

You can see his new button on his stomach, he is being fed so the tube has formula in it.  His belly button has gauze because they went in through it.  The other wires are all monitoring things.

Allison got to go bowling today for the first time!