Where did Wednesday go?

Hmmm, so I guess I never posted about Wednesday.  It was busy! :) We got up and Caleb had his swallow study first thing in the morning.  (he couldn't eat before it, but it was scheduled for 8 so it was ok) They were running a bit late so it didn't start until almost 9.  They had taken his tube out of his nose the previous night because they wanted to get a true picture of how he chewed and swallowed.  He slept a lot better and I even had to wake him up a little before 8 to get ready.  (I was pretty glad it was my night to sleep with him since he did so well!) Anyway, they had him eat 7 different things that all had barium in them.  They needed him to take 2-3 bites of each thing.  As he was chewing and swallowing they took an x-ray video of his profile.  It was pretty cool to watch.  He ate better there than he has in weeks! I was so thrilled! He ate and drank everything they needed him to. It was over pretty quick and we were done with tests for the day.
Unfortunately they came to our room within a few hours to put his tube back in, they still didn't want him drinking anything by mouth.  He wasn't very happy when they put it back in (duh) but left it alone and didn't really gag on it this time.
We went up for the results later that afternoon.  We got to watch the video and the Speech therapist showed us what was happening and what they were looking for.  It was all VERY interesting.  I feel like I remember a lot about science from school, so most of what she was saying I knew parts of.  Anyway, it showed that Caleb has trouble swallowing.  He gets fatigued and has to really work at manipulating the food in his mouth and to get it down his throat.  It sometimes gets stuck right over the entrance to his airway before it goes down.  The end result is they want him to no drink liquids by mouth.  Besides his bottle he didn't drink a lot anyway, and since we have been here he has only asked for juice 1 time.  I was kinda surprised he didn't want his bottle since that is the first thing he does in the morning and the last thing before bed.  Although he hasn't been drinking very much anymore.  They say that kids can know it hurts or they have trouble with it so they don't want to drink.  Caleb has always been very in tune with his body and I have come to trust that.  I am so looking forward to the stress free eating for him.  He can eat as much or as little as he wants and it really doesn't matter.
We were supposed to see the Physical Therapist here and go by the Mobility clinic to get a device to help prop him up when he is sitting or sleeping but we ran out of time for both.
My parents brought us dinner and they brought the girls with them! I miss them so much! When I go home on my nights they are already in bed and I leave before they get up.  I am really looking forward to being home with all my babies.  It was my night to go home so I did, all the while thinking about what tomorrow was going to be like.

The surgery post should come after this, but like I said, I totally forgot about Wednesday so they are a little out of order :)